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U11G Heat participate in the Cystic Fibrosis Foundation Great Strides Walk




Durango, CO - The U11 girls Heat completed their 2014-2015 GOAL project by participating in the Cystic Fibrosis Foundation Great Strides walk in Durango on April 26th. This was a BIG weekend for the girls! In addition to playing 4 soccer games, they raised donation money and participated with their families in a 5K walk on a rainy Saturday morning hosted by the Southwest Community College nursing students. The girls chose this project to support their team mate, Annelise, who was diagnosed with Cystic Fibrosis (CF) at birth.  CF is a life threatening genetic disorder that primarily affects the lungs and the digestive system. In the 1950s, few children with CF lived to attend elementary school. Since then tremendous progress has been made in understanding and treating the condition. Now many people with CF may live into their 40s and beyond. It is a historical time in scientific research and the treatment of CF. For Annelise, a new medication called Kalydeco may be curative for her genetic mutation. Unfortunately only 4% of the CF population is eligible for this treatment. The Cystic Fibrosis Foundation's venture philanthropy model led to the development of this and other exciting new medications that are dramatically improving the quality of life of patients with CF and one day may offer a cure. Team Heat raised $3500 dollars with help from a matching grants. Way to go U11 girls Heat for showing  leadership and teamwork, and for helping CF to stand for CURE FOUND!
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